The former Little Mix star was celebrating her twins, Ocean Jade and Story Monroe Nelson-Foster, as they turned one
Jesy Nelson has been seen marks her twins’ first birthday(Image: Jesy Nelson Instagram)
Jesy Nelson has shared an emotional tribute as she marked her twins’ first birthday, months after sharing their devastating SMA1 (spinal muscular atrophy) diagnosis.
The former Little Mix star announced in January that her daughters, twins Ocean Jade and Story Monroe Nelson-Foster had been diagnosed with the severe muscular disease SMA1 (spinal muscular atrophy), a genetic condition which causes progressive muscle wastage.
Soon after sharing the news publicly, Jesy began campaigning to get screening for the condition added to the newborn heel prick test, which, according to the NHS website, is offered to every baby at five days old, and has been raising awareness about the condition.
marked the babies’ first birthday on Friday and shared a heartfelt video on Instagram where she recited the poem Welcome To Holland by Emily Perl Kingsley which describes what it feels like to raise a child with a disability.
Now, Jesy has been celebrating the twins as they turned one on Friday (May 15), having been born prematurely in May last year, describing them as the “strongest, most resi
Jesy was seen marking Ocean and Story’s first birthday(Image: Jesy Nelson Instagram)
Alongside a video showing their journey into the world and the lead-up to celebrate their first birthday, the singer said: “I cannot believe it has been a whole year since having my beautiful baby girls. They have been through so much. There will never be enough words to describe just how incredible they actually are.
“My tiny little super humans. The strongest, most resilient little fighters I’ve ever known. You inspire me and every single person that ever meets you both.”
She added: “One whole year old today what a mile stone to reach. I read this poem a little while ago by Emily Perl Kingsley ‘welcome to Holland’ and I think this sums up their journey so beautifully. Happy Birthday my Ocean and Story you are my whole heart and soul I love you more than you will ever know.”
In January, Jesy revealed that her daughters’ diagnosis meant they are unlikely to be able to walk or regain their neck strength. She has since been campaigning for the condition to be added to the newborn blood spot screening test as early treatment can help avoid some of its most devastating effects.
She met with the former Health Secretary Wes Streeting in January to speak about the life-changing impact early detection of the condition could have had on her twins and in April visited 10 Downing Street. She also became a patron of the charity SMA UK in February.
