Jesy Nelson has revealed she’ll be heading to Parliament on Monday for a crucial debate on newborn SMA screening, speaking out tearfully about the unfair ‘postcode lottery’ that leaves some babies without access to life-saving tests.

The 35-year-old singer, who welcomed twins Ocean and Story in January, shared that her daughters were diagnosed with SMA Type 1, a rare condition affecting muscle strength. The late diagnosis means the twins require specialist equipment to breathe and feed, and may never walk unaided.

Having campaigned tirelessly for the NHS to include spinal muscular atrophy in newborn screening, Jesy celebrated the news that, from October 2026, the program will begin. But she stressed that it currently covers only 72% of England, warning, “A postcode lottery like that just isn’t fair. Every baby deserves the same chance.”

Jesy encouraged fans to support her cause, inviting them to tag MPs and join her outside Parliament ahead of the debate. “This is about our children’s futures,” she said. “No baby should miss out because of where they live.”

The singer praised her followers for helping push the campaign forward, sharing that more than 150,000 signatures were gathered for the petition to include SMA in newborn tests. “If babies get treatment early, the results are life-changing,” Jesy said. “Without it, children can face severe disabilities.”

The NHS currently carries out heel prick tests for 10 conditions, including cystic fibrosis, at around five days old. Jesy has long argued for SMA to be added, emphasizing the difference early detection can make.

In recent interviews, Jesy spoke candidly about the daily challenges of caring for her twins, describing the experience as an “emotional rollercoaster” but praising her daughters as “the strongest, most resilient babies” who she believes will defy the odds.