Jesy Nelson will open up about one of the toughest periods of her life in her new documentary, revealing why treatment for her twin daughters was delayed after they were diagnosed with Spinal Muscular Atrophy Type 1 (SMA).
In Jesy Nelson: Life Changing, the singer shares the heartbreaki
ng reality of caring for daughters Ocean Jade and Story Monroe, who were born in May 2025. The documentary, which arrives on Prime Video this Friday, sees Jesy speak candidly about the emotional journey her family has faced.
Jesy’s daughters Ocean Jade and Story Monroe have the condition, which can cause muscle weakness.
Jesy is no longer with Ocean and Story’s dad, Zion Foster. He has since spoken out, insisting “the end of a relationship does not mean the end of fatherhood”.
Jesy Nelson shares family heartache in new documentary
According to The Sun, in the documentary, Jesy reflects on the impact the delay had while discussing her daughters’ health. Throughout the documentary, she speaks openly about how difficult the experience has been.
Jesy explains that not long after the twins received their diagnosis, daughter Story was rushed to hospital with pneumonia. Days later, Ocean also became unwell.
Jesy says in the doc: “Not long after we got the diagnosis, they were booked in to have their treatment. Then Story got pneumonia and was really struggling to breathe.
“She started choking so we had to rush her into hospital. It breaks my heart because she’s so vulnerable.”
She adds: “That’s when we were told that she can’t have the treatment.”
As reported by The Sun, any delay in treatment increases the chance of permanent nerve and muscle damage. Heartbreakingly, it was decided that Story and Ocean were not well enough to receive the gene therapy treatment.
In the doc, Jesy says: “That was when she got given her breathing machine. She came home and then Ocean got ill.”
Elsewhere in the episode, Jesy’s now ex-partner Zion, Story and Ocean’s father, admits: “I’m not equipped to deal with this. I’m out of my depth; emotionally, physically and mentally.”
Jesy Nelson’s ex-partner addresses ‘out of depth’ comments after documentary
Now, Zion has addressed his comments in an Instagram post.
He said: “When I said I was ‘out of my depth’, I wasn’t saying I was walking away from my children or abandoning my responsibilities as a father.
“I was talking about the overwhelming reality of suddenly facing a rare and complex medical diagnosis that I knew nothing about, I was being honest.
“Being out of my depth meant I was learning. It meant I was trying to understand.”
Zion added: “It never meant that I didn’t love my daughters or that I wasn’t going to be there for them. I love my girls more than words could ever express. They are my world and always will be.
“The end of a relationship does not mean the end of fatherhood.
“Jesy made the decision to end our relationship and, while I respect that, it does not change the fact that I remain committed to my daughters in every way I possibly can.
“I attend every appointment. I educate myself every single day about their condition. I ask questions. I listen. I learn.”
He concluded: “I support them however I can because being their father is the greatest responsibility and privilege of my life.
“This journey has been heartbreaking for all of us. Nobody prepares you for news like this and we’re all navigating it in our own way.
“I feel the pain alongside Jesy because they are our children, and I always want what’s best for them. Please don’t mistake vulnerability for abandonment. They’re not the same thing.”
Jesy Nelson calls documentary her ‘most heartbreaking’ project
Ahead of the documentary’s release, Jesy urged fans to tune in as she reflected on just how emotional making the series had been.
Speaking on Instagram this week, Jesy told her followers: “This is truly the most heartbreaking series I’ve ever had to make, and I urge you all to watch it.
“No future babies born with SMA should have to live their lives like this, I am so grateful for all of your continued support and I will keep on shouting about this until change is made.”
The singer has remained in the spotlight since leaving Little Mix.
Her latest documentary offers an intimate look at life as a mum to Ocean and Story, while laying bare the emotional challenges her family has faced as they waited for treatment.
