Sick thieves steal Jesy Nelson’s car full of hospital equipment for her twins
Little Mix star Jesy Nelson is offering a £10,000 reward after her car was stolen from her driveaway in the early hours of Sunday morning
Little Mix star Jesy Nelson is offering a £10,000 reward after her car was stolen from her driveaway in the early hours of Sunday morning.
Jesy, who lives in Brentwood, Essex, pleaded for information as she told her followers that the car contained much of her girls’ hospital equipment in it.
The singer’s twins have been diagnosed with been diagnosed with SMA Type 1, a rare muscle-wasting condition.
Taking to Instagram, Jesy explained her black Land Rover Defender had been stolen “in the early hours of this morning”. She asked anyone with information to contact her or the police as “I have so much of my girls hospital equipment in that car that’s really needed.”
She added that the car was last picked up at 3am around Chelmsford and was offering a “10k reward to whoever helps recover it.”
Jesy has been relentless as she raises awareness about her girls’ condition that weakens the muscles by affecting the motor nerve cells in the spinal cord.
The type the adorable tots have is the most common and the most severe. It means that those with it, including little Ocean and Story, have a life expectancy that is estimated at less than two years without medical intervention.
The singer recently celebrated a ‘major milestone’ and said she is ‘really proud’ how far things have come.
“I just wanted to come on here to share some information and news that I have heard over the last couple of days,” she said. “As you know I’ve been campaigning to try and get SMA as part of the newborn screening here in England. My girls were diagnosed with SMA Type 1 and unfortunately they weren’t tested at birth because it wasn’t here in England.
“They have now decided to roll that out in October for all babies in England to be tested at birth for SMA, which is absolutely incredible. I know it is a really big moment for the SMA community because this has been going on for years trying to get this passed, so yeah it is a real proud moment.”
The Mirror is also campaigning for all newborn babies to be tested for SMA so they can be given new treatments which are effectively a cure – if administered at birth.
The star told us after the news: “It’s just bittersweet because we’re not fully there yet. It’s like literally a postcode lottery because it’s not the whole of England. There’ll be 163,000 babies that won’t get screened – and that is a lot of babies. If you live in a certain part of the country you’re not going to get tested.
“There are truly life changing treatments out there so no baby should be an experiment – showing what the difference is. This shouldn’t even be a thing. All babies should be getting tested and all babies should be living.”
There are now three treatments that stop the disease progressing currently approved on the NHS. The first Nusinersen, which has a brand name Spinraza, is injected directly into the spinal chord every four months, and encourages the body to produce more SMN protein.
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